Ouchies

The hospital stay was no fun at all but Cam was able to go home on Thanksgiving and once he got home he had a great night... We quickly learned this was just a honeymoon. He has not slept since! He has been up screaming in pain in his ears (to be expected with this surgery) since and has been taking enough to stay hydrated but has lost so much weight that he didnt have to lose in the first place. I am beyond sleep deprived and have had no time to spend with Brody and feel awful about it. They are finally getting us oxycodone suppositories for Cam so I'm hoping that will help break the cycle. It could take up to 14 days for all of these agonizing symptoms to go away... It's going to be a brutal 2 weeks.


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Don't hold your breath

I'm in ICU cause when I'm mad or in pain I like to hold my breath til I turn blue. I feel pretty crappy but did good during my surgery.


Am I the saddest thing u ever did see? They won't let me go home until I drink and I refuse to so looks like we're spending turkey day at CHOP. I need lots of presents to cheer me up people!


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Location:S 34th St,Philadelphia,United States

Worry worry worry

So Cameron's surgery is tomorrow and as if I couldn't be upset enough about leaving Brody with the nurses for a few days, now Brody's sick again!

Wishing I could be in two places at once... Twins! Worry worry worry!


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My best friend is engaged!

After a lot of reworking 24 hour nursing coverage for Brody I was so fortunate to be able to surprise Christine at Seneca Lake, NY where her boyfriend proposed to her! It felt so good to be there for my friend who has been so supportive on my endeavors as well as challenges. We all had so much fun and I have never seen her happier.

Lots of love Tine and Brett!



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Potty time ?!

Looks like the big boy potty is a bigger hit than the little guy ones I have all over the house... Fine by me! Tomorrow we try it sans pants!


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Reminders of just how fortunate we are

Cameron saw his retinologist today- the man who called the whistle and sent us to Michigan in hopes of salvaging whatever was left of his vision. The sight of Cameron brought tears to his eyes. He never imagined when he met this baby 2 years ago in the condition he was in that one day this beautiful, strong, SIGHTED child would walk in his office. Cam is doing so much more visually than anyone ever expected! His eyes are one of the true miracle stories of our Two Tough Twins and we are amazed by his capabilities in this area every day. Dr Kaiser is responsible for saving this child's vision. We are forever grateful to him

Everyone is ok!

Hello loyal Cambrodia fans... I'm so sorry that I have fallen behind on my blogging responsibilities! I will explain in a later entry what has been going through this head of mine which lead me to take a break from sharing.

I didn't want you all to worry. The kids are doing well. A few weeks ago Cameron's general surgery team was concerned about his weight and had us logging his intake and there was a threat of a gtube. Good news is he gained more than what they wanted since then and he is now off the radar on that front. He is however having his tonsils and adenoids removed on Tuesday. Thanksgiving will be at CHOP for half of us and home with Brody for the others. Cam is expected to be there 3-4 days as this is a more serious surgery considering his young age and other issues. It may sound like a simple t&a but this is his airway.

Brody's bronch has been rescheduled for January 2. Hoping for some good news for the new year...

I promise more details to come but I'm just so wiped out exhausted.

I'll do my best to write after his surgery.


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