Saturday, December 29, 2012

Why haven't you blogged??!!


I know I've been MIA on my posts but I just haven't been in the mood lately. I have so so many amazing people who have been as understanding of how different our lives are as they can be (understanding that they can not possibly understand at all) but believe it or not I've also faced a lot of criticism. There are some out there who think I'm over protective, that my kids look "relatively healthy" so I must be keeping them away for personal reasons, or that based on the beautiful pictures I post on Facebook that our lives must be all rainbows and puppy dogs. Thank G-d my boys are growing and developing into the amazing little men that they are. However, we still have so many obstacles and difficulties every day that I can not continue to reiterate to those who clearly will never get it. My priority is the boys, their health, when the opportunity is right socializing them with other children their age, surrounding myself with people that make me laugh and have been my support system since day one and family...true unconditional love kind of family who have always offered help and never asked anything in return.

I am so over being judged for being an over-protective parent. I may put an image out there that makes it seem in pictures like my kids are just like any other child, but the facts are that they are not. They are different and require more delicacy and sensitivity in every way. Brody breathes through a hole in his neck and if that apparatus fell out he would have no means of continuing to breathe. He can not speak and communicate with his mommy and daddy like other children his age. He has to stop his play when he needs to be suctioned and have a catheter shoved down his trachea and have his saliva vacuum sucked out for him. Cameron's sensory issues require him to receive input every 2 hours, he can barely look or touch food let alone eat it. He can not stray from his schedule or he becomes more difficult to manage than usual. It takes 2 hours of kicking and tossing for him to get to sleep then he wakes several times during the night. Brett and I each sleep with a child in separate beds every night. We NEVER get to sleep in the same bed. No pity party here but I just think that all of these things tend to fade into the background when the kids accomplishments and cuteness are in the forefront.

I have become paranoid about posting outings and proud moments of the kids because soon after I get someone calling, writing, whatever about being offended that they haven't met them or been in our lives. From the start I have asked for patience. I knew that there would be people who get it and those who don't. Unfortunately the ones who don't wont take this journey with us to that point where we can finally parade the kids in celebration.

To the many many many of you who have been supportive, patient and selfless-you are wonderful friends/family and we truly can not have gotten through all of this without you. And to those few who have made me so self conscious about using this blog as an outlet or caused controversy that has infused any negativity...try to imagine walking a mile in our shoes or anyone who may be undergoing any unusual challenges in life.

Ok I'm stepping down from my podium now that I've aired it out and will catch up on pics and commentary I held back on posting.

Lots and lots of love and thanks.
- Posted using BlogPress from my iPhone



- Posted using BlogPress from my iPhone

Thursday, December 20, 2012

December 2012

Hanukkah was a blast but not so different from the every day life of Brody and Cameron getting showered with presents. When you're a preemie this tends to be a norm... Tough beginnings=LOTS of presents. So then to accomdate all of the toys the entire house needs to be repurposed and wardrobes built specifically to house "kid stuff". Invasion of the twins!

Reading together and listening to moms horrible singing voice that only a son could love


New tvs in the car


Only way to keep them happy in the mom-mobile



I've been sleeping with Cameron most of his life due to his sensory issues keeping him up or waking most of the night but now Brody is on to us. It appears as if he is now Brett's permanent roommate.

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Saturday, December 8, 2012

No O2!!!

Since Brody tried to climb out of his crib


I decided it was time once again to trial him off the oxygen for sleep. I didn't expect anything spectacular as this has been a fail in past attempts. Well, 2 nights in a row he held great blood oxygen saturations on room air alone!!! Freakin fabulously amazing Brody! I couldn't be happier that we can kiss goodbye yet another medical need.

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