Wednesday, December 4, 2013


Cam saw his retinologist today- the man who saved his vision when he was just days from being completely blind. Dr Kaiser sees him only once a year now (he sees several other eye specialists much more often). For being such a practical and seemingly stoic person the sight of Cameron brings him close to tears every time. I can tell how proud and relieved he is to see how functional Cameron's vision is when there was a very good probability of much much worse of a visual outcome. He just blows him away every time. Other than needing 3 grown adults to restrain my kid and pry his eyelids open it's a nice "perspective moment" to step back and be reminded of how far we have come an show lucky we are.

Ran into the neighbors and boys best buds going to see the lights at Feeneys. They're all too cute together.



We transitioned his head garments to underpants from pull ups as well- potty training SUCKS


Gaga's new pup and Cam's new best bud "Cutie"



Boys are showing that potty who's boss! I don't know about one of these infamous "3 day potty trainings" but it seems as if there is more pee pee getting in the potty and less of it on my floors every day.

Brody's next big airway clinic appointment is Monday so we're anxious to hear the newest plan to get this damn trach out. Voicing is coming along very very slowly. Still just sounds. Every time we work together on it my heart breaks that he can barely project sounds but I have to be patient with this just as we have been with everything else and trust that it will come around.


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