Brody has pneumonia! Fortunately I am a whiz with a ventillator and his pulmonologist trusts us to care for him at home for now. So we will watch him very closely this weekend and put him back on the vent at night and antibiotics to try to keep him out of the hospital. Cold and flu season has shown its face early on for us this year!
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Thursday, September 27, 2012
Wednesday, September 26, 2012
Big boys 2nd birthday!
Friday, September 21, 2012
Videos
Night of the first sounds we have heard out of Cameron in a loopn time. Beautiful sounds!
We use these special therapy brushes to desensitize the mouth but need to use something he likes to get him to do it. His favorite things are Greek yogurt and hummus. What a weird kid.
Omg I'm hysterical-Christine is now calling Brody Zohan because he brushes his teeth with hummus! Lol
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Tuesday, September 18, 2012
What a difference kids make
Today I had a breast ultrasound to check out some lumps. I didn't think I was overly concerned going into it but my first eerie feeling happened when I got there and realized the last time I was at that location was when we found out we were having twins. What a polar opposite end of the spectrum to now be there to check out my lumpy boobs. Once they did the ultrasound and left the room to talk to the radiologist my mind went racing. Why was it taking so long?! I started crying and called my mom in a panic. What would happen to the boys?! I was reminded of how lucky I am when they FINALLY came in to tell me it was just dense glandular tissue but wow did my imagination get the best of me. When I had this done before kids I wasn't quite so scared or upset but those little goobers mean the world to me and the chance of me not being healthy enough to care for them or watch the amazing things they are going to do with their lives was paralyzing in that moment. I am so grateful for my health and to be fortunate enough to be well enough to give them everything I have every day.
A little shout out to my mom's friend Rachel who is my age with a 2.5 year old and just diagnosed with breast cancer. I think about you EVERY day.
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A little shout out to my mom's friend Rachel who is my age with a 2.5 year old and just diagnosed with breast cancer. I think about you EVERY day.
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Friday, September 14, 2012
He speaks!
I have waited and worked so very very hard to help Cameron to meet this very important milestone. He's finally talking! This was one of the best days of life ! I could not be more proud, shocked, fortunate... I was so scared this day might not come. Again, when you have a preemie developmental delays instill a fear of 'what does this mean for his future???' What a sweet beautiful voice and smile that comes along with it!!!
While I was crying tears of joy for Cameron I actually found myself sobbing simultaneously in pain for Brody. I have never mourned for Brody's development delays because he is so right on point except for the things that are medically caused by the presence of his Trach. This time I could see the confusion on his face at the sound of Cameron's voice like 'why can't I do that?!' he was mouthing and trying so hard to mimic Cameron to produce voice. It was heart breaking. My poor Brody just had his first realization that he was different. He will have his day too...Today we are allowed to celebrate Cameron accomplishments.
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While I was crying tears of joy for Cameron I actually found myself sobbing simultaneously in pain for Brody. I have never mourned for Brody's development delays because he is so right on point except for the things that are medically caused by the presence of his Trach. This time I could see the confusion on his face at the sound of Cameron's voice like 'why can't I do that?!' he was mouthing and trying so hard to mimic Cameron to produce voice. It was heart breaking. My poor Brody just had his first realization that he was different. He will have his day too...Today we are allowed to celebrate Cameron accomplishments.
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Monday, September 3, 2012
Adult outtings
As hard as it is to leave my guys emotionally, medically, and logistically once we are finally out it is freeing. We had my close friend Jess's wedding this weekend down the shore. Brett told me that night I was the person he fell in love with 6 years ago... I'd have to agree that I have not been that person in a very long time. We were able to kick back, have some drinks, and dance and laugh with good friends. It felt great and it was a great reminder that we still need to do for us.
Awesome wedding Jess and Matt. Xoxo
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Awesome wedding Jess and Matt. Xoxo
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Saturday, September 1, 2012
Cameron's dream come true
Erica's wedding
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