Two Tough Twins

Monday, May 13, 2013

See you in the OR!

Today was the last time we will see Brody's ENT surgeon until the day of his reconstruction. Today it became real!

As we watched him play in the waiting room of the airway clinic we were dished another reality that we tend to forget when we get wrapped up in our own world... We were reminded that even with all of the obstacles our children face we are so lucky for their physical and neurologic health. Many kids with trachs are not as fortunate as Brody when it comes to other systems being in tact.

So the next month and a half consists of a barrage of labs and tests and other doctor's appointments to prepare for the big day.

So proud of us and our men.

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Wednesday, May 8, 2013

Surgery scheduled!

Brody has a surgery date. If all goes according to plan he will be having his airway reconstruction July 2. Hoping to squeeze in Camerons tenotomy (eye muscle surgery) in before that as Brody's recovery will be our biggest focus after the July date.

Hoping for the happiest of Independence Days for our family.

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Monday, April 29, 2013

A little spring bronchitis

Of course its Brody I'm talking about. Now on another antibiotic in addition to his long term one... We wouldn't even have known but they took labs of fluid in his lungs when he was in the OR last week.

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Wednesday, April 24, 2013

Just hanging around

Love this shot

Fun day at Ga Ga's

My buddy and me

Bumpin up and down in our little red wagon

Lovin my daddy

Edamame

Lickin some fritos

Loving their new swing set

Ordering up some drinks from barkeep Brody at the Twins Tavern

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Tuesday, April 23, 2013

Amazing news!!

Best news of Brody's little life... His inflammation has reacted to the azythromyacin therapy and he is eligible for laryngotracheal reconstruction to begin the process of getting his trach out! We have a looong way to go still but today is something to celebrate... Tomorrow we plan.
He will have rib cartilage harvested and grafted to bridge the gaps of ressected diseased tissue in his trachea. He will have a two stage meaning he will come out of the 5 hour surgery with his trach still in place and once fully healed in 2-3 months and after passing a barrage of other tests they would be able to remove it.
All of our hard work and dreams for Brody came to fruition today.
If you thought we were strict with contact with our kids before... We are stepping our isolation up even more to keep him healthy enough to have this life changing surgery and heal properly after.
So proud of him and everyone who has helped us get to this point.

Angel baby sleeping after getting the news