Cam post op

Can barely open his bloody eyes but nothing is going to keep him from playing with his trains and cars!

Successful Surgery

Cam did great in his surgery. Came out with eyes bleeding so I had a little bit of a hard time with that visual but that's to be expected. He has been very uncomfortable but handling it beautifully! I'm so proud of how my super sensitive kid is handling this better than most other 2 year olds would! He slept all day yesterday an we have been trying to keep him in his room with the drapes drawn. He is super sensitive to light and his eyes are all red and meaty. It could take 2 weeks for that to go away. We went for a follow up doctor's appointment which confirmed that his head tilt when focusing is fixed already. It will take some time for the brain to become accustomed to his new way of seeing but all was a success.


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Cam going in to surgery

All marked up and ready to go back. Should be in for about an hour. They will be tightening 4 muscles in the eye. This is not going to be very fun recovering with my super sensitive man....


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Cam surgery tomorrow

Getting nervous!


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This week

Cams eye surgery has been moved to June 19. I'll be with Brody all day Thursday and Friday at CHOP for doctors appointments and preop testing-seeing general surgery to check his enlarged lymph node, seeing speech for another swallow study, seeing Pulmonology for some new bacteria/infections found on his most recent culture, then he gets bloodwork and a chest X-ray. He is going to be one miserable kid, and I'm going to be an even more miserable mom after the next two days!

Found MRSA and psuedomonas in his last culture so a week before his surgery we will be adding 2 more big antibiotics to his usual zpack! That's a lot for such a little guy but we have to make sure nothing interferes with his healing.


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Memorial Day Weekend 2013

What a fab Memorial Day weekend outside ALL day long and being happy 2 year olds. Cameron would stay outside 24 hours a day if he could and Brody would prefer if I could leave a door open so he can run in and out a million times. Adding a sand table to the equation and a bunch of big kid neighbors playing kick ball and doing cartwheels through the grass to deliberately crack my boys up made for some happy twins. This momma hasn't seen this much sun since pre baby days and is just loving every minute of it. Soaking it all up now knowing that we will be stuck in the hospital soon but this weekend wasn't about any of that. This weekend Brody and Cameron were just like any other little kid running through the backyard in bare feet and splashing around the water with their cups.




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Our summer

Cameron eye surgery June 7, Brody tracheal reconstruction July 2. Everything in between and for quite some time after will be recovery and germ free healing for optimal results. Hopefully this last stretch will mean that this time next year we will be in a very different position. It has been a much longer process than we ever could have anticipated but our end results have too exceeded anything we could have imagined.

From little acorns grow mighty oaks.








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