Memorial Day Weekend 2013

What a fab Memorial Day weekend outside ALL day long and being happy 2 year olds. Cameron would stay outside 24 hours a day if he could and Brody would prefer if I could leave a door open so he can run in and out a million times. Adding a sand table to the equation and a bunch of big kid neighbors playing kick ball and doing cartwheels through the grass to deliberately crack my boys up made for some happy twins. This momma hasn't seen this much sun since pre baby days and is just loving every minute of it. Soaking it all up now knowing that we will be stuck in the hospital soon but this weekend wasn't about any of that. This weekend Brody and Cameron were just like any other little kid running through the backyard in bare feet and splashing around the water with their cups.




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Our summer

Cameron eye surgery June 7, Brody tracheal reconstruction July 2. Everything in between and for quite some time after will be recovery and germ free healing for optimal results. Hopefully this last stretch will mean that this time next year we will be in a very different position. It has been a much longer process than we ever could have anticipated but our end results have too exceeded anything we could have imagined.

From little acorns grow mighty oaks.








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See you in the OR!

Today was the last time we will see Brody's ENT surgeon until the day of his reconstruction. Today it became real!

As we watched him play in the waiting room of the airway clinic we were dished another reality that we tend to forget when we get wrapped up in our own world... We were reminded that even with all of the obstacles our children face we are so lucky for their physical and neurologic health. Many kids with trachs are not as fortunate as Brody when it comes to other systems being in tact.

So the next month and a half consists of a barrage of labs and tests and other doctor's appointments to prepare for the big day.

So proud of us and our men.

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Surgery scheduled!

Brody has a surgery date. If all goes according to plan he will be having his airway reconstruction July 2. Hoping to squeeze in Camerons tenotomy (eye muscle surgery) in before that as Brody's recovery will be our biggest focus after the July date.

Hoping for the happiest of Independence Days for our family.


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A little spring bronchitis

Of course its Brody I'm talking about. Now on another antibiotic in addition to his long term one... We wouldn't even have known but they took labs of fluid in his lungs when he was in the OR last week.


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Just hanging around

Love this shot


Fun day at Ga Ga's


My buddy and me


Bumpin up and down in our little red wagon


Lovin my daddy


Edamame


Lickin some fritos


Loving their new swing set


Ordering up some drinks from barkeep Brody at the Twins Tavern


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Amazing news!!

Best news of Brody's little life... His inflammation has reacted to the azythromyacin therapy and he is eligible for laryngotracheal reconstruction to begin the process of getting his trach out! We have a looong way to go still but today is something to celebrate... Tomorrow we plan.
He will have rib cartilage harvested and grafted to bridge the gaps of ressected diseased tissue in his trachea. He will have a two stage meaning he will come out of the 5 hour surgery with his trach still in place and once fully healed in 2-3 months and after passing a barrage of other tests they would be able to remove it.
All of our hard work and dreams for Brody came to fruition today.
If you thought we were strict with contact with our kids before... We are stepping our isolation up even more to keep him healthy enough to have this life changing surgery and heal properly after.
So proud of him and everyone who has helped us get to this point.

Angel baby sleeping after getting the news