When we woke up this morning and made our usual check-in call we learned that one of our kids was misbehaving last night. Since Cameron's ventillator went back in 2 days ago he decided he didn't want/need it anymore and he was going to take matters in to his own hands and cough it out. Daddy's rebellious little man! He is now ventillator free once again.
My visit this morning was a little rough... they were taking turns with their apnea episodes-they were forgetting to breathe a bit too often for our liking. As Brett says, it was like a casino in there with all of the machines flashing and alert sounds. It's pretty hard to watch when they have to be nudged to bring them back but it comes with the territory of being so small. All of this unfortunately is typical for this stage.
I left earlier than usual so that the boys could rest without being bugged for once. These kids need to just "be" and grow for a little. It gets harder and harder to stand by and not be able to do much but I know that they are in good hands.
I just called to see if they were doing any better and got a little relief to hear that they are. They decreased their feedings which hopefully took some pressure out of their bellies and therefore off of their diaphrams and lungs... I had a weird intuition that they were increasing their feedings too fast but I'm not a doc, what do I know?? A lot of this type of medicine is trial and error...wish the error part would stay away from my kids though.
So, we're "STATUS QUO" again. We like status quo. We hope to be hearing status quo a lot.
I love these kids so much it hurts.
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