Brody now has a fungal and a bacterial infection in his blood. I did one of my 48 hour sleepover marathons this week when things got scary again. Yesterday this poor baby was put through so much. Because of the fungal infection they have checked all of his organs to make sure nothing has settled in them. He had an echo to check his heart, ultrasounds to check his belly, lungs, kidneys, bladder, spleen and pancreas and all of the big veins and arteries. He had an eye exam to make sure nothing made its way to the retinas. He then got a spinal tap to check his cerebrospinal fluid. On that test they saw the pressure in his head was double what it should be so he went down immediately for a brain CT. After all of this he had his central line (port where meds,fluids and nutrition go in and blood is taken from) pulled as is was infected an a new one placed in his chest. Infectious Disease is here constantly monitoring and Immunology has been thrown into the mix to observe for metabolic disorders. There is no speciality that has not been involved in some way in Brodys care. All of his tests were to determine if any damage had already taken place. Everything has cone back clean so far. Now we have to work on clearing his infection out of he blood so that we can keep all of his important parts in this condition.

Once I got home after 2 days of no sleep and not seeing Cameron of course I lost it this morning... And so did Brett. We are exhausted in every way possible.


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