After begging and pleading for months with every doctor, therapist and anyone who would listen for help, ideas, advice we finally followed a lead from the doctor at the NICU follow up clinic and got some answers. ENT confirmed today that Camerons adenoids are so enlarged that they are obstructing 75-80% of his airway. There is evidence of trauma to his larynx caused by his continued reflux. He will have an endoscopy from GI as well to asses any other damage. We have put off our trip to Ohio until April when we hopefully have sorted out his more immediate health issues. We are of course concerned about this serious information but also there is a sense of relief knowing that there are some answers to his feeding, sleeping, breathing and increased severity of his nystagmus and sensory issues.
We're going to get to the bottom of this and get this baby all fixed up again!
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