I've heard from a lot of you that you have been looking for updates and have been surprised I haven't written in so long. Not to worry, everything is fine over here I think we're just finally becoming accustomed to this as normal life and no longer trying to rush through it unaffected or wish for it to be something it's not. The fact is that the boys are healthy... The rest is clearly very important but we are living in the moment now and not in the ideal tomorrow anymore. We learned that we were setting ourselves up for disappointments and heartbreak having those kinds of expectations. We recently learned that Brody's airway is still inflamed and that his next look in the OR has been put off until November...meaning he will be unable to communicate verbally for ??? Signing will become his foundations of language and our primary method for our son to communicate with us... Then the added challenge of teaching Cameron so that he too can understand when Brody signs. The Trach is there for an unpredictable amount of time and so too is the medical equipment, suctioning and nurses.
Cameron is doing very well with his sensory therapy and has really come a long way since we started. Feedings and sleep are still a very long way from being what they should but we'll take the progress we've made as an example of what is still to come on other areas.
1 month away from 2 years chronologic and I have two beautiful, funny, loving little boys to celebrate. We are so fortunate to have amazing kids that inspire us to be better parents and people everyday.
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