Last Friday, this Friday and some stuff in the middle

On Friday we called 9-1-1 in panic and fear as Brodys vents were both malfunctioning (later we realized due to a common error made when hooking up the tubing that I am responsible for doing every week. When we felt like he wasn't properly ventilating we decided in an emergency to do a trach change. When trying to put a new one in to the stoma in his throat my nurse and I could not get it in and he started bleeding a lot from his airway. There was so much blood that we were scared that we hit an artery and that he was breathing the blood back down into his lungs. Another traumatizing image I will never ever forget. We were very fortunate at with oxygen he was able to breathe through his mouth and nose all of the way ton the hospital.

He is doing great now and will hopefully be transitioning ton only oxygen during the day without the extra pressures of his vent... Sure would be nice to have less to carry around, pop off, and maintain. I just want to be able to walk more than 2 feet with my baby without dragging an IV pole of equipment behind me.

This Friday Brody will be having tubes placed in his ears in the OR and some scar tissue cauterized out of his throat. We are hoping he will be home same day.

The anniversary of the boys birth is this Sunday or as we are calling it "Early Bird Special Day". It is officially their birthday but it's going to be a few years yet before we can emotionally bridge the gap between their actual age and their corrected age. It's been a rough month thinking about where we were a year ago at this time. Of course we can't do anything public or with anyone more than immediate family due to the state of theirnimmune systems but one day there is going to be the biggest birthday bash any kid has ever seen! Regardless we are so lucky to have both of our sons here smiling at us every morning and amazing us every minute.

Cams big day of looking at the world differently