Brody has a surgery today and will need to stay at Chop for 24 hours... Nothing compared to what this kid has been through in the past but the older and more aware they get the harder these things become. He will have a bronchoscopy-a camera down his throat to determine the state of his trachea without his Trach in... This will determine when Brody will permanently have his Trach removed. He will have redundant tissue around his Trach removed so that he can begin to wear his speech valve so that he can learn how to verbalized and taste and sense foods better. He will then have GI come in the do an endoscopy-another camera down his esophagos, stomach and intestines. Then he will stay overnight in the ICU with a tube placed from his nose to his belly that will measure acid levels to tell us if he is still refluxing (which could also get in the way of his Trach coming out). During the 24 hour span that the ph probe is placed he will have restraints on his arms to prevent him from pulling it out...makes me so sad. Of course our hope is that the tests will reveal that Brody is ready to begin the process of decannulation and we will have a more defined timeline for when this will happen.
General anesthesia always sucks. Hospital stays always suck. Being away from Cam sucks big time. But hoping that all of our hardwork will pay off and Brody will be tube free in a few months.
Cameron gave Brody one love bite for the road
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